The UK Epilepsy and Pregnancy register was established in 1996 for pregnant women
in the UK.
The major objective is to obtain and publish information on the frequency of major malformations, such as heart defect, spina bifida and cleft lip, among infants whose mothers take one or more antiepileptic drugs (AEDs) to prevent seizures.
Women with epilepsy who become pregnant, whether or not they are on treatment for epilepsy, are eligible to register. This must happen early in pregnancy and before the outcome is known.